Page 17 - An Innovation Spirit ...
P. 17
ed Tube of Canada Group of Companies is a
provider of steel pipe and tube in North
for the energy, construction and industrial
Welded Tube and its employees are
d as industry leaders in each of their three
groups.
E OF CANADA
O SUPPORT
INNOVATION
E
RD01 IAC CENTRE numerous health issues, including
palate problems, congenital heart
The holistic defects, psychiatric issues such
approach to 22q as anxiety and/or schizophrenia
and learning disabilities. It affects
A world-first facility treats the complex, multisystem health needs of adults one in 2,000 infants, and, until
with this little-understood genetic disease recently, trying to get a diagnosis,
especially for adults, has driven
By Renee Sylvestre-Williams families into a tailspin of years
of doctors’ visits before getting
“I really like going because you a home. There is carpet on the dedicated to the adult treatment an accurate diagnosis and a
can get all your tests done in one floor, and the waiting room looks and research of a little-known treatment plan. But, instead of
place,” says Genevieve Dalglish. more like a living room with genetic disease called 22q11.2 the patient going to see different
“I’m treated like gold. I like my a light-grey leather sectional Deletion Syndrome (22q11.2DS), doctors in different locations on
doctors very much.” Ms. Dalglish couch. The lights are warm, not colloquially known as 22q. different days, the doctors come
is talking about the Dalglish harsh, and the reception desk is to the patient and do all their
It was previously known as tests and checkups at the clinic.
SfFotarmraidluyulHtsce, aarttttshuaenPdreMtearinMdlsunCklinic Mnweaartmlyethtuwcckitehhdwawoaoady.naAcdciedncstosma, aenld DiGeorge Syndrome or velo-
Cardiac Centre (PMCC). cardio-facial syndrome, and it’s “We call it the diagnostic
Unlike traditional clinic decor, the Dalglish Clinic feels more like caused by a missing piece (the odyssey,” says Dr. Anne Bassett,
there is very little metal. Instead, a comfortable, well-appointed “deletion” in 22q11.2 Deletion Director of the Dalglish Clinic.
when you walk in, the foyer looks condo than a medical clinic. Syndrome) on chromosome She explains that it can take years
more like the entranceway of 22. As a result of this deletion, or even decades before patients
The first of its kind in the patients with 22q can have and their families are given a
world, this integrated clinic is diagnosis of 22q. For adults with
22q, there was a desperate need
for a centralized place to work
with patients and families.
Camilla Dalglish, who
spearheaded the donation
Winter 2016 15
