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ON ON1                                                                                                                    SATURDAY, JANUARY 31, 2015 TORONTO STAR⎮M11

                                                                                                                          PETER MUNK CARDIAC CENTRE

> BEATING THE ODDS

Mechanical heart helps battle rare disorder

Potentially fatal condition                                                                                                                                                             TIM FRASER FOR THE TORONTO STAR  “When she arrived, I was worried

interferes with heart’s ability          After being diagnosed with myocarditis in 2005, Sally Fung, right, spent six weeks at the Peter Munk Cardiac                                                                     she wouldn’t make it to the
                                         Centre. She has since recovered and now has three children, a daughter and twin boys, with husband, Tim.
to pump blood to the body                                                                                                                                                                                                 operating room in time.”
                                         to perform a CT scan and doctors         rived at the PMCC.                       Fung had myocarditis, inflamma-
JASMINE MILLER                           compiled all her records and test re-     Switching Fung from the ambu-          tion of the heart caused by autoim-                                                             DR. VIVEK RAO
                                         sults. Fung would travel an hour by                                              mune disorders, environmental tox-                                                              CHIEF OF CARDIAC SURGERY AND
SPECIAL TO THE STAR                      ambulance the next day from Mark-        lance equipment to the hospital         ins or, as in her case, a viral infection.                                                      DIRECTOR OF TRANSPLANT AND
                                         ham Stouffville Hospital to the Peter    equipment caused her breathing to       It’s a potentially fatal condition that                                                         MECHANICAL SUPPORT AT
In April 2005, Sally Fung had just       Munk Cardiac Centre in Toronto           become laboured again.                  interferes with the heart’s ability to                                                          PETER MUNK CARDIAC CENTRE
finished her final exams — she was       where her records had been sent.                                                 pump blood through the body.
tired and stressed. Like many under-                                               She remembers asking attendants,                                                                                                      performs three or four every month,
graduate students, late nights and a      Ask her if she feels that decision      “Please put the other oxygen mask        Myocarditis is rare — fewer than 10                                                           according to Rao, who created the
quick-energy quick-crash diet were       also saved her life and she says: “It’s  back,” and then, “I saw a bright light  cases per 100,000 people — and usu-                                                            BiVAD program14 years ago.
catching up with the 23-year-old.        not that I feel like they (the PMCC)     and three angels coming to get me.”     ally causes one heart ventricle to
She had all the signs of a bad cold,     saved my life. I know they saved my                                              shut down. In Fung’s case, both ven-                                                            After a few days, Fung showed signs
maybe even the flu, since the back       life.”                                    Fung was put in a medically indu-      tricles had stopped working; the Bi-                                                           of recovery. Less than two weeks af-
pain was excruciating.                                                            ced coma and taken to surgery.          VAD was doing all the work.                                                                    ter being attached, the BiVAD was
                                          Waiting at Markham Stouffville for                                                                                                                                             removed and her own heart took
 Shortly after crawling into bed on      transport to Toronto that spring          “When she arrived, I was worried        The hope was that the device would                                                            over.
May 1, she told her boyfriend (now       night, Fung had12 drugs in her IV, so    she wouldn’t make it to the operating   take over for Fung’s heart long
husband) she couldn’t breathe. He        there was no more pain and she was       room in time,” says Fung’s surgeon,     enough for the organ to recover and                                                             Fung stayed at the PMCC for nearly
insisted they go immediately to the      calm. “I didn’t know that I should be    Vivek Rao, chief of cardiac surgery     then work on its own.                                                                          six weeks. More than half that time
local hospital’s emergency depart-       scared,” she says.                       and director of transplant and me-                                                                                                     was spent relearning things most
ment. That decision may have saved                                                chanical support at PMCC.                The odds were not in her favour.                                                              people take for granted.
Fung’s life.                              Her mother and boyfriend, howev-                                                 “I had only a 20 per cent chance of
                                         er, were fully aware and terrified.       When she woke up two weeks later,      keeping my own heart,” she says.                                                                “I had breathing tubes. I lost ability
 It was 1 a.m. when the couple ar-                                                Fung was covered by a sheet, under      That’s why her name was also put on                                                            to eat — the reflex of swallowing, you
rived at the hospital and, other than     Doctors were concerned Fung’s           which her chest was still open, her     the transplant list. In 2005, the                                                              lose that after laying down for14 or15
unusually low blood pressure, Fung       heart would stop during the ambu-        damaged heart hooked up to tubes        PMCC performed four or five of                                                                 days,” she explains. “I had to learn
looked fine.                             lance ride to Toronto.                   leading to a two-pound Biventricular    these procedures per year; today it                                                            how to talk because there was a (tra-
                                                                                  Assist Device (BiVAD) that sat at her                                                                                                  cheotomy) hole in my throat.”
 “There were hardly any doctors           That didn’t happen until she ar-        bedside.
working, so they didn’t want to admit                                                                                                                                                                                     After her recovery, Fung and her
me,” she remembers.                                                                                                                                                                                                      husband earned their MBAs togeth-
                                                                                                                                                                                                                         er at McMaster University and got
 Her future husband was persistent,                                                                                                                                                                                      married after graduation. She defied
telling medical staff, “She doesn’t                                                                                                                                                                                      the odds again, when she became
look right, you need to examine her.”                                                                                                                                                                                    pregnant with her first child four
                                                                                                                                                                                                                         years ago.
 When her blood pressure took an-
other plunge, to 60 over 40 (normal                                                                                                                                                                                       Because of her history, Fung’s was a
is 120 over 80), Fung was admitted                                                                                                                                                                                       high-risk pregnancy. That meant
and given an electrocardiogram.                                                                                                                                                                                          monthly ultrasounds, not only to
                                                                                                                                                                                                                         monitor the baby, but on her heart as
 Her blood pressure was still drop-                                                                                                                                                                                      well. Today, her 3-year-old daughter
ping, but she wasn’t bleeding. She felt                                                                                                                                                                                  is happy and healthy and, a little over
nauseous, but had only a small din-                                                                                                                                                                                      a year ago, was joined by twin broth-
ner hours earlier.                                                                                                                                                                                                       ers.

 “They couldn’t put the pieces to-                                                                                                                                                                                        Her annual followup visits with
gether,” says Fung.                                                                                                                                                                                                      doctors at PMCC “are mostly just
                                                                                                                                                                                                                         chit-chat now,” Fung says. Gone are
 There was, however, enough evi-                                                                                                                                                                                         the stress tests and regular ultra-
dence to warrant admitting her to                                                                                                                                                                                        sounds.
intensive care, where she was given
an ultrasound on her stomach. No                                                                                                                                                                                          She won’t ever forget what hap-
damage, no explanation, nothing.                                                                                                                                                                                         pened to her, but the only visual
                                                                                                                                                                                                                         marker, a scar from her collarbone to
 The doctor told her, “Since we’re                                                                                                                                                                                       below her breast, is fading.
here, I’ll ultrasound your heart, too.”
That spur-of-the-moment decision                                                                                                                                                                                          “It doesn’t hurt anymore, either,”
may also have been life-saving.                                                                                                                                                                                          she says. It’s an indication the experi-
                                                                                                                                                                                                                         ence is well behind her, part of her
 Fung’s heart was swollen.                                                                                                                                                                                               history.
 “I’ve never, ever seen such a big
heart,” is what she remembers being                                                                                                                                                                                       “Life is normal now.”
told.
 After that, things moved fast.
 At 3 a.m., technicians were called in
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