Page 33 - PMCC on the Globe and Mail - 2016 Edition
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01 Football player                cells. This condition could in        over, and Darrian said, ‘Mom,         risk that he could damage his
          Darrian Seaton-                   turn lead to a risk of dangerous      please, just let me go. I will be     implanted defibrillator,” says Dr.
          Tucker says that                  arrhythmias.                          right back; I just need a minute,’ ”  Gollob.)
          the day his heart                                                       says Ms. Seaton.
          stopped mid-                       Mr. Seaton-Tucker was                                                       “Right now it’s my little
          game, he’d been                   referred to Dr. Michael Gollob,        “It felt good to get out, but I was  nemesis,” says Ms. Seaton of her
          feeling “pretty                   a Cardiologist, Scientist and         still very sore,” adds Mr. Seaton-    son’s wish to return to football.
          good.”                            Chair of the Peter Munk Centre        Tucker. These days, he says, he       “My foot is totally on the brake. If
          02 Darrian and                    of Excellence in Molecular            barely notices the implanted          it were up to Darrian, he would
          his mother, Leis                  Medicine at the Peter Munk            defibrillator at all. “Mornings       be like, ‘I’m just going to check
          Seaton, rejoice                   Cardiac Centre (PMCC). He’s           sometimes I feel it, but other        out the field, see what it’s saying,’
          in the freedom                    part of the internationally           than that, I don’t really pay         but he needs to just walk a little
          the implantable                   recognized Inherited Arrythmia        attention to it.”                     bit, just take it easy.”
          defibrillator                     Program at the PMCC, one
          inserted by                       of the largest of its kind in the      Mr. Seaton-Tucker graduated           Regardless of what the future
          Dr. Michael Gollob                world, which sees more than           from the local high school in         holds, Mr. Seaton-Tucker says
          has given him.                    1,000 patients a year.                June, and now he’s taking a year      that his experience with SQTS
                                                                                  off before university, focusing       has profoundly affected him and
                                        01   Dr. Gollob recommended               on getting a part-time job and        made him realize how precious
                                            Mr. Seaton-Tucker get an              getting his body back in good         life really is.
some kind of heart arrhythmia,              implantable defibrillator,            physical condition. He says he
but they didn’t know why.                   which would protect him in the        wants to play football again in        “It’s true when they say life is
                                            event of a recurring dangerous        the future, although Dr. Gollob       very short and it can be taken
 “It was very surreal for me                arrhythmia. The defibrillator         does not recommend it. (“Due          away very fast,” he says. “So I
because all I could think was, My           would be surgically placed under      to the high physical impact from      guess that is one of the positives
son is like a lion; he’s an athlete.        his skin.                             this sport, there is a significant    I’ve gotten from this
What do you mean he has a heart                                                                                         experience.”
problem? What are you saying                 “[Mr. Seaton-Tucker] essentially
to me?” remembers Ms. Seaton,               died from this condition [at           02
who flew out to be with her son             the game in Princeton], but
as soon as she got the call.                fortunately received CPR and a        “[Darrian] essentially died from
                                            ‘shock’ from paramedics to return     this condition but fortunately
 “I was helpless. And as a                  him to life,” says Dr. Gollob.        received CPR and a shock from
mother, we don’t know that                                                        paramedics to return him to life.”
language.”                                   “The risk of recurrence of this
                                            sort of sudden event is high.         Dr. Michael Gollob
 After doctors woke him from                There is no single medication
the coma, Mr. Seaton-Tucker was             proven to lower his risk. The
transferred by air ambulance to             condition is not influenced by
the Hospital for Sick Children              diet, weight or exercise. The
in Toronto. A battery of tests              safest treatment is the placement
followed, and he was diagnosed              of a defibrillator, which works
with Short QT syndrome (SQTS),              by sensing his heart rhythm,
a rare genetic disease of the               beat by beat, and should it
heart’s electrical system. People           detect a deadly arrhythmia, the
with SQTS have abnormal                     defibrillator will shock his heart
electrical properties of their heart        to terminate that dangerous
                                            arrhythmia,” says. Dr. Gollob.

                                             Ms. Seaton was unsure at
                                            first about her son getting the
                                            implantable defibrillator, but
                                            says Dr. Gollob explained why it
                                            was his best shot at preventing
                                            cardiac arrest and getting his
                                            quality of life back. At the time,
                                            Mr. Seaton-Tucker was required
                                            to carry a portable defibrillator
                                            with him at all times, as well as
                                            constantly have someone with
                                            him who was trained how to
                                            use it on him in case of another
                                            cardiac event.

                                             “Darrian always had to be with
                                            somebody, and if you know my
                                            son, he gets in those moods
                                            where he’s like, ‘I want to shut
                                            everybody out and I want to be
                                            by myself.’ So it was a real chore,”
                                            says Ms. Seaton.

                                             The procedure to implant the
                                            defibrillator was successful, and
                                            Mr. Seaton-Tucker relished his
                                            new-found freedom.

                                             “The same day, his friend came

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